Not-So-Good Health Update

As you know, I had my PET/CT on Friday and have just been waiting for those results. I hadn't heard from them, so today I called Dr. Mck.'s office and had them fax me the report.

He is out of the office today, but will be back tomorrow...I should be seeing him soon to discuss what comes next.

I don't have any definitive answers, just a bunch of medical mumbo jumbo on a report that unfortunately I have learned to interpret pretty accurately.

The report was pretty much all bad...progression of disease, spreading to other places (right pelvic bone), increasing activity in sternum spreading into right breast, etc.

With my rising tumor marker and the way that I have been feeling, I knew this scan would bring bad news.

I have been finding it more difficult to breathe, so it was not surprising that the scan showed increased fluid around my left lung and heart. I can literally feel the heaviness in my chest. As much as I hate to admit it, it might be time for another lung drain.

In addition, I will need to get going on another form of chemo very soon. I'm not sure how they're going to get the drugs into my body since I no longer have a port.

That is one of the things we will be discussing...the possibility of placing another port somewhere, or maybe a PICC line (which I have fought since day one back in 2000, but might have no choice about now).

I haven't heard back from the neurologist's office about the scheduling of my brain MRI, so I called and left a message with them today as well.

My jaw and neck continue to spasm involuntarily, it's very disruptive and painful...not to mention it keeps me from doing two of my favorite things: eating and talking.

So now...we wait. And hope, and pray.