<---Wishing I was there, in one of those hammocks.....As some of you may have noticed over in the 'ChemoFest 2006' sidebar to the right, I said that chemo #6 is 'sorta' done.
Here's the scoop on that little piece of loveliness: I only got to have one of my drugs yesterday (Taxotere, which is the one with the most/worst side effects) because someone (who shall remain nameless {ahem, Amy}) forgot to order the clinical trial drug (Avastin) for this treatment (which has been scheduled for months).
Therefore, I get to have chemo again on Wednesday. Nice, huh?
So, to summarize: because of someone else's mistake, I have to take more time off of work when I'm already feeling like crap and when my counts are spiraling downward to have part of the treatment I should've gotten yesterday. No biggy though, it's not like this is important or anything, it's not like it's a life or death situation. Oh, but wait...it IS!!!!
But whatever, I'll just go in on Wednesday and get it done and move on. Bottom line is this: Amy is no longer my contact person for the clinical trial portion of my treatment. Nelda, the person who had to tell me the drug wasn't there and apologize for Amy's mistake is now my clinical trial coordinator.
Ultimately, I am happy about the switch because Nelda was an ICU nurse for 20+ years and has been through breast cancer herself. She was even diagnosed the same year I was with my first go-around (2000). She got into the field of oncology because of her personal experience with cancer, I respect and admire her for what she's seen and gone through in her professional and personal life. So, she and I really connected in a way Amy and I never did, and I feel like she's a little more sympathetic to what I'm going through.
(Whew, I made it through that part of the post without cussing once! I'm trying to keep my blog clean for my family, but my friends can insert the bad words where they know I'd actually be saying them.)
So far I'm feeling okay...mostly just tired and drugged out. As usual, the steroids are working their 'magic' on my vocal chords and messing with my sleep.
4 comments:
Whew! That made me want to cuss FOR you!! Like having chemo isn't bad enough without people messing with your schedule! I hope things go better with your new contact person.
Sending you hugs and hope for a calm weekend.
Deb C.
Deb,
You got that right. You get it all planned out in your head, get yourself all pumped up with bravery and strength. Then bam, somebody in their ineptitude and carelessness who obviously just doesn't 'get it' messes up your well-laid out plan.
I loved your post about your drive to Anchorage and your encounter with the belugas...it sounds like very spiritual experience. I love how our journey makes us appreciate moments like that all the more!
Hope your rads are going well. Is it about 25 more to go? You'll be in Hawaii before you know it!!!
~Kelly
!!@#$%^&*())(*)(&^%$#%$##@$#@^$%#^%%&&^%(*^)*&^%^&%^%#%$#@!!!!!!!!!!!!!!!!!!! (X2)!!
p.s. let me know when it's my turn for the chemo date!
Leave it to one person to screw everything up. If she had one ounce of compassion she would have made sure everything was in order for you. Glad you were able to get somebody else as your contact. :)
Hope Wednesday isn't too hard for you!
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